The path to diagnosis of a chronic illness is often not straight but marked with painful twists and turns. For one writer, it took more than a decade of doctor visits, biopsies, and dashed hopes to finally be diagnosed with lichen sclerosis—a rare and painful skin disorder that attacks the genitals. Head to Instagram to read about her harrowing journey, and follow HealthCentral’s socials to learn, share, and vent about life with 150+ chronic conditions.