BBMRI.nl Newsletter July 2020

Focus meeting to kick-start Dutch cBioPortal community
All cBioPortal users and developers are invited to the first Dutch cBioPortal Focus meeting. It will be the first official cBioPortal community meeting and will help cBioPortal users and IT-developers to get the most out of their platform. The online event, organized by Health-RI and DTL, will be held on September 9th. Find out more about the event here.

How to deal with incidental findings. Guide for researchers now available in English
BBMRI.nl has developed a guide for researchers and research groups. It presents a practical and ethical framework for detecting, dealing with and informing about incidental findings in (biobank) research. As a result of a joint effort of BBMRI.nl and BBMRI-ERIC, the guide has now been translated into English. Read our full news story about the guide here.
On the occasion of the publication of the English translation, BBMRI-ERIC and BBMRI.nl together organized a webinar with Dr. Eline Bunnik, one of the authors of the guide. To see the webinar, click on the recording of the webinar.

The ELSI Servicedesk received its 100th question!
Guidance and answers on ethical, legal and societal issues that research on personalized medicine raises. That is what the ELSI Servicedesk promised to deliver when this service was launched in July 2018. We now celebrate the symbolic milestone of our 100th question and that the medical research community has found its way to and use of this platform.
The ELSI Servicedesk website is written in Dutch and designed to answer questions from researchers, caregivers, patient advocates and policy makers. Questions can be asked in English as well. Find out more here.

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